Join us for our virtual conference!

saturday, September 11, 2021, 09:00 - 17:30 (Gmt+1)



About this Event

Join our Virtual Conference to learn more about scleroderma and Raynaud’s from expert speakers who are leaders in their fields.  They will be covering a whole range of information including advances in treatments, tips for self-management, new research and so much more. This interactive conference experience will give you the opportunity to ask leading healthcare professionals questions in real time, speak to and connect with others in the community, interact with our exhibitors and relax in our health & wellbeing zone.

Please join us for this unique event!

About SRUK 

Scleroderma & Raynaud’s UK (SRUK) is the only UK Charity dedicated to improving the lives of people with scleroderma and Raynaud’s phenomenon. We are here to improve awareness and understanding of these conditions, to support those affected, fund ground-breaking research and ultimately, to find a cure. For further information about SRUK, click here.

Event Agenda

Note: There will be plenty of breaks throughout the day.


Morning Sessions 9.30 – 12.30


Sue Farrington, Chief Executive
What are we learning from research?
What new treatments are in the pipeline?
A look at how your health data can drive progress in research & health care services
Choice of 2x breakout sessions
A Practical Guide to caring for your Skin, Hands and Feet
Find out what the symptoms are, what treatments are available and how you can manage your ILD.

Afternoon Sessions 13.15 – 17.00


Find out why patient-reported outcomes are important in developing treatments for patients.
Choice of 2x breakout sessions
Find out about current progress in treatment regimens and what care you should expect your child with (localised/ diffuse) scleroderma to receive.
A look at facial, oral and dental care including microstomia and Sjogren’s
Choice of 2x breakout sessions
Find out who is at risk, what are the symptoms, how is it diagnosed and what are the effective treatments.
Find out about types of treatment, managing side effects and practical advice for living well with GI involvement.
Will COVID change the way we deliver healthcare?
What new approaches to treatment are on the horizon?


During the breaks there will be an Exhibition Space and a Health & Wellbeing Zone featuring sessions on: Qigong or Tai Chi, Face, mouth, and hand exercises, Mindfulness, and exercises to help improve balance.

Why You Should Register for This Event?

FREQUENTLY ASKED QUESTIONS

Anyone from anywhere! No matter what your connection to scleroderma and Raynaud’s is, whether you are living with the conditions, a caregiver, a healthcare professional, or passionate about the fight against scleroderma and Raynaud’s, this conference will have something of interest for you.
Yes, the conference is free to everyone to participate, however if you would like to make a donation to SRUK then you can do that by clicking here
You should expect all the best elements of an in-person conference, but from the comfort of your own home. We have included everything that is important to our community. You will get access to informative content delivered by world-renowned scleroderma experts, and the opportunity to connect with and learn from other people living with the condition across the country.
All of this, and much more, will take place in an easy-to-navigate online platform that will make you feel like you are at an in-person conference.
Yes, you can access the content for up to 30 days after the event has ended.
If you can navigate this webpage, you will be able to navigate the conference platform. It is very intuitive and even if this will be your first digital conference, once you see the space, you will pick it up quickly and access everything easily. A guide will be provided to help you navigate the conference platform If you do find that you need help, we will have someone available to answer technical questions during the day of the conference. 
The only thing you need is a reliable internet connection and a device with a web browser — phone, tablet, or computer. The Conference platform is responsive and will work on any device, but for the best experience, we do recommend participating via tablet or computer.
If your device has a camera, you will have the option to participate in video chats with our partners in the Exhibit Hall, but it is not required. Closer to the Conference, we will send out some more tips to get the most out of your experience, as well as who to contact if you do have any issues.
You do not need to do anything right now, but you could help us spread the word about the Conference! If you know anyone who might be interested, then share the link to the conference with them; you could even share it on your social media channels. 
Prior to the Conference on 11th September 2021, we will be sharing exciting announcements about the agenda and speakers, as well as more information to make sure you are fully prepared for the event.

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