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Join our Virtual Conference to learn more about scleroderma and Raynaud’s from expert speakers who are leaders in their fields. They will be covering a whole range of information including advances in treatments, tips for self-management, new research and so much more. This interactive conference experience will give you the opportunity to ask leading healthcare professionals questions in real time, speak to and connect with others in the community, interact with our exhibitors and relax in our health & wellbeing zone.
Please join us for this unique event!
Scleroderma & Raynaud’s UK (SRUK) is the only UK Charity dedicated to improving the lives of people with scleroderma and Raynaud’s phenomenon. We are here to improve awareness and understanding of these conditions, to support those affected, fund ground-breaking research and ultimately, to find a cure. For further information about SRUK, click here.
Note: There will be plenty of breaks throughout the day.
| OPEN 09:00 - 09:30 |
Site opens. 'How to navigate the site video' Exhibition open |
| Welcome 09:30 - 09:40 |
Welcome to SRUK Virtual Conference |
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Speaker
Professor Dame Carol Black |
| Keynote 09:40-10:30 |
The Latest Advances |
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What are we learning from research? Professor Chris Denton |
| Wellbeing break 10:30 – 10:35 |
5min video |
| Plenary Session 10:35 – 11:15 |
Can Patient Data Save Lives? |
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A look at how your health data can drive progress in research & health care services SpeakerDr Meghna Jani |
| Coffee Break 11:15 – 11:45 |
Coffee Break/Exhibitions Health & Wellbeing Zone |
| 11:45 – 12:30 | A Practical Guide to caring for your Skin, Hands and Feet |
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A Practical Guide to caring for your Skin, Hands and Feet SpeakerDr Cate Orteu |
| 11:45 -12:30 | Interstitial lung disease (ILD) in Systemic sclerosis (SSc) |
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Find out what the symptoms are, what treatments are available and how you can manage your ILD. SpeakerDr Elisabetta Renzoni |
| Lunch 12:30 – 13:30 |
Lunch/Exhibitions Health & Wellbeing Zone |
| Welcome back 13:30 – 13:35 |
SRUK ‘host’ welcome back and introduce the next session. |
| Plenary Session 13:35 – 14:15 |
Does Doctor Know Best? |
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Find out why patient-reported outcomes are important in developing treatments for patients. SpeakerDr Alain Lescoat Dr Francesco Del Galdo Patient speaker |
| Wellbeing break 14:15 – 14:20 |
5min video |
| 14:20 – 15:00 | Localised Scleroderma in Children and Adolescents |
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Find out about current progress in treatment regimens and what are you should expect your child with localised scleroderma to receive? SpeakerDr Clare Pain |
| 14:20 – 15:00 | Face Facts |
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A look at facial, oral and dental care including microstomia and Sjogren’s. SpeakerDr Elizabeth Price |
| 15:05 – 15:55 | Annual Tests – What is Pulmonary Arterial Hypertension in scleroderma |
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Find out who is at risk, what are the symptoms, how is it diagnosed and what are the effective treatments. Speaker Dr Colin Church |
| 15:05 – 15:55 | Understanding Gastro-Intestinal tract involvement. |
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Find out about types of treatment, managing side effects and practical advice for living will with GI involvement. Speaker Dr Elizabeth Volkmann |
| Coffee Break 15:55 – 16:10 |
Coffee Break/Exhibitions Health & Wellbeing Zone |
| 16:10 – 17:00 | What Does the Future Hold? |
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What will research into Scleroderma look like in 2040? What pioneering treatments are likely to be offered? How will the way care is delivered have changed? Join our panel of experts for this interactive session to learn more about their vision of what the future could hold – and how we can make it a reality! Speaker Professor Chris Denton Dr Elizabeth Volkmann Dr Francesco Del Galdo |
During the breaks there will be an Exhibition Space and a Health & Wellbeing Zone featuring sessions on: Qigong or Tai Chi, Face, mouth, and hand exercises, Mindfulness, and exercises to help improve balance.
Facebook: @WeAreSRUK, Twitter: @WeAreSRUK, Instagram: @wearesruk; Youtube: WeAreSRUK
